Legislation would expand research on Tourette Syndrome

The bill would fund research and advance understanding of the condition

To kick off Tourette Syndrome Awareness Month, Congressman Albio Sires (D-NJ) reintroduced the Collaborative Academic Research Efforts (CARE) for Tourette Syndrome Act of 2021 to expand and increase the coordination of Tourette syndrome research at the National Institutes of Health (NIH). Sires represents the 8th Congressional District, which encompasses most of Hudson County.

“I am proud to reintroduce this important legislation that would greatly benefit those impacted by Tourette Syndrome,” Sires said. “Tourette Syndrome impacts approximately three million people across the country, and those individuals living with Tourette Syndrome are too often misunderstood and stigmatized.”

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Improving lives 

Tourette Syndrome is a neurological disorder characterized by repetitive, involuntary movements and vocalizations called tics. The NIH estimates that 200,000 Americans suffer from the most severe form of the syndrome.

The CARE for Tourette Syndrome Act would seek to improve the daily lives of those living with Tourette Syndrome and their families by expanding and coordinating research efforts to advance understanding. The bill would direct the Secretary of Health and Human Services (HHS) to develop a new system to collect data on the syndrome.

The secretary would award grants to establish new Centers of Excellence focused on Tourette syndrome research. The centers would conduct research on the cause, early detection, diagnosis, prevention, control, and treatment of Tourette Syndrome.

“The work done by the NIH is critical for advancing our understanding of Tourette Syndrome,” Sires said. “Collaborating this research with centers of excellence will create great strides in research on Tourette Syndrome, and will lead to breakthroughs in research that help benefit the lives of all those Americans impacted by this condition.”

Sires introduced the bill to the House of Representatives in 2019. U.S. Senator Bob Menendez introduced the legislation in the Senate in 2015, reintroducing it in 2020.

For updates on this and other stories, check www.hudsonreporter.com and follow us on Twitter @hudson_reporter. Daniel Israel can be reached at disrael@hudsonreporter.com.

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